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Illinois Safeguards Users of Home-Based DNA Testing Kits

July 29, 2019, 4:42 PM

Direct-to-consumer DNA testing businesses such as ancestry.com and 23andMe are barred from sharing Illinois consumers’ genetic test results with insurance companies under legislation signed by Gov. J.B. Pritzker.

Pritzker, a first-term Democrat, signed H.B. 2189 on July 26, amending the Illinois Genetic Information Privacy Act. The new requirement takes effect Jan. 1, 2020.

The measure comes amid the fast growth in direct-to-consumer (DTC) genetic testing, which can offer information about the user’s ancestry and predict health conditions, among other services.

Public Act 101-0132 specifies that any company providing commercial genetic testing services “is prohibited from sharing any genetic test information ...