Most patients would donate their health data and biospecimens for biomedical research, but few are willing to share everything, and institutions’ current consent practices don’t accommodate this, a study found.
The findings indicate more research institutions should shift how they ask patients for permission to use their data from an all-or-nothing approach to one that relies on a tiered consent model that allows for partial use of electronic health information.
Institutions rarely use a tiered consent model, often due to criticisms that it’s too cumbersome and not practical to pick and choose which information a patient can share in a ...