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Convergence of Genomic, Human Study Spawns Culture Clash

June 6, 2012, 4:00 AM

The culture of genomics research, which has operated largely under an open-source, data-sharing atmosphere, must be aligned with the starkly different principles of autonomy and privacy protection in human subjects research, a National Institutes of Health official told a webinar May 24.

“We have genomics and human subjects research, which for a long time operated in separate spheres and didn’t have to intersect much while genomics was in a very basic stage,” Laura Lyman Rodriguez, director of policy, communications, and education for the National Human Genome Research Institute, part of NIH, said. “Over the intervening few years since the [human]...

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